tag:blogger.com,1999:blog-64735757748766029892024-03-13T22:32:05.342-07:00Our Journey--65 RosesEricahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.comBlogger89125tag:blogger.com,1999:blog-6473575774876602989.post-2075118868777694432011-03-14T20:07:00.000-07:002011-03-14T20:07:44.911-07:00I get Down You Lift Me Up-Audio Adrenaline<iframe width="425" height="344" src="http://www.youtube.com/embed/cIvDCV4e318?fs=1" frameborder="0" allowFullScreen=""></iframe>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-3273860392357312052011-03-14T20:03:00.000-07:002011-03-14T20:16:21.207-07:00My Son Has Made Me BetterMy son, Hunter, is a tue gift from God. I feel like he is trying to teach me things when it should almost be the other way.
<br />We danced to the songs, "I Can Only Imagine", and "Lifting Me Up" tongiht and we had the BEST time dancing and praising God in our living room.
<br />I know I posted the song of "I Can Only Imiagine" before but will post the other one too. I guess I already did LOL. He knows the words to these songs. All of them, from going to church and listening to Christian music on the radio. All the songs...are rocker songs. LOL My babie...my little mini me. That's how I was. I'm so proud of him and so glad it's with Christian than the crap I listened to when I was younger.
<br />All is good with us. Hunter goes in for his physical this Thursday for his sinus surgery next Friday. I know God is with us. I KNOW He is. No doubt. I can't even begin to explain how Hunter has helped ME with the walk with God. It took a child of God's to show me what is most important in life. Hunter has been more of a blessing for Brandon and myself than anything. He's a believer, no doubt. He's been touched by God himself I believe.
<br />So, I had my important appointment and all is good with me. Praise the Lord!! Lots of praying and praising in this house.
<br />If something comes in our way, we will tear it down with the power of God. He is the almighty one, and we are not afraid of anything, because we have HIM!!
<br />All's good though. We pray for our family and friends and hope all is well. Love evryone.
<br />If there's anything that I've learned from my kids (and yes usually it's the other way around, but you'd be surprised) it's live life every day as if it's your last. Trust God, believe and have faith. Turn it all to HIM.
<br />
<br />Love my Lord and Savior, my family and my friends.Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-56697304669659187492011-03-14T20:02:00.000-07:002011-03-14T20:23:09.178-07:00I get Down You Lift Me Up-Audio Adrenaline<iframe width="425" height="344" src="http://www.youtube.com/embed/cIvDCV4e318?fs=1" frameborder="0" allowFullScreen=""></iframe>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-11412620366254395932011-02-26T22:05:00.000-08:002011-02-26T22:44:04.780-08:00Signs...In more way than one--You Won't Believe ThisOk... to start out I want everyone to know that we are doing ok. A lot of appts. coming up not only for Hunter, for his sinus surgery, but an appt. to make sure mommy is ok as well. <br />Hunter has his surgery on March 25 and I have an important appt. on March 12.<br />But this is all on a different note.<br />We ordered tonight on tv the movie Paranormal 2. Once they got to the point of a ouigie board and the youngest sons name came up Hunter, we turned it off. There goes $5. Oh well!!<br />If anyone knows me, the house we lived in before, had "something" in it. We moved into an old farm house, where we were the first renters after the mom had past away in that house. This isn't it.<br />Around the day we moved in, there was something "weird" sbout the house. <br />After about 6 months to a year living in that house, I was trying to buckle Serenity into her car seat, Hunter was still in the house. As I was leaning over into the car, I felt 3 taps on my back. 3 taps. As I was still trying to get Ren into her seat, I was yelling at Hunter to get back into the house and I would get him in next. I go to turn around after buckeling her in, and Hunter was in the house the WHOLE time.<br />Second thing, I had happen and hubby was there for that. It was 2am and Brandon got up to check on the kids and they were asleep sound in their beds. I was already up and we go to lay back down, and all of sudden we hear this pounding on our door...at 230/3am in the morning. We are able to look out our upstairs bathroom to our back door, and NO ONE was there. A hard pounding/banging that would wake you out of your sleep.<br />The other thing that happened to me was, I was going to throw out garbage at night one night at like 6pm. I stop dead in my tracks and hear this voice, plain as day, "No, not now." What the hell is that supposed to mean????<br />A lot happened at that house. I can say that my hubby never doubted me one minute. I think it was the 3am pounding on the door made him believe me, I don't know.<br />We have since moved but watching this movie tonight, it was $5 worth losing. Having the name Hunter in it, and the things that were happening, we had to just turn it off.<br />Spirits do exist. I don't have an explanation. They just do. I believe that. Being that we believe in God and so strong in our faith, we moved, and are in a better house right now. <br />That house was wrong. Beautiful....yes. But, it came with circumstances. We didn't know it at the time and just chalked it up to an old farmhouse in the sticks with things that "may" have happened. But the taps on my back were so real and I honestly thought it was Hunter. I KNOW I heard a voice, "No, not now" and don't understand that and don't want too at this point. You never know what the history is, even though I checked on it, and nothing showed up. You never know the history.<br />My husband will never doubt me or nor will I ever doubt him. <br />Believe in what you believe. I believe in God. And God wanted us out of that house and we are. Happy. Go with your feelings. Know that God is there to protect you in anything. <br />The signs are there if you are willing to see them.Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com2tag:blogger.com,1999:blog-6473575774876602989.post-65041264008317916972011-02-14T16:52:00.000-08:002011-02-14T17:06:55.738-08:00CF SUCKSSo, I have not been on in a while here posting, nor Facebook. I have been going through so much lately that I feel like I am just so mad and angry at CF. More now than ever.<br />Hunter has been having issues with his sinuses for so long. Antis that have been presribed for the past have usually taken care of the stuffy nose thing. Nothing coming out when he blows it, no other symptoms, nothing. So, last Friday we took him into the ENT to finally figure out what has been going on. Hunter, since last October has been on antis every month for his sinuses. Nothing's worked. He had a CT scan of his sinuses on Friday and was told to call today to get the results. I did, first thing I did this morning. I called and the nurse says, "I will have to have the Dr. call you." My question then was, "What's going on?" She said " It's showing severe sinus inflammation and the Dr. will call you today to let you know what to do." "Um, okay."<br />4:00 came and I called them again. I told the nurse to make sure the Doc gets this message as well as the other one because I WANT answers.<br />So the Dr. calls back at 4:30 and says that Hunter has sinus disease which is basically saying sinus inflammation. He said that he has so much inflammation (gunk) in his sinuses under his eyes that the best thing to do would be surgery. My heart dropped. He said being his past and antis not working previously, that this would be the best option. It would be an incision, for under his eyes, where all the gunk is at. He said it's like us doing CPT on his lungs for the mucous but the mucous is in his sinuses. What the hell is going on.<br />Hunter has always been so healthy when it came to CF as is Ren. This is something that I know may be minor to some, but major to me. I hate CF. It's just one more thing that I feel CF is trying to control, and it WON'T!<br />Rens on another anti for this persistant cough that she has. I just want CF to go away already. Please, God, just take the CF away.<br />Going to be strong for Hunter during this time, although, I want to cry and punch the friggen wall at the same time. But, I HAVE to stay strong.<br />The nurse is going to call in a couple of days to set the appt up for his surgery. Outpatient, should only take a couple of hours and will be able to go home. Thank God for that.<br />Prayers. Simply said...we need your prayers. <br />I always tell the other mommas to stay strong but now I have to take my own advice.Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com4tag:blogger.com,1999:blog-6473575774876602989.post-21716954365607324942011-02-04T16:24:00.000-08:002011-02-04T16:24:55.750-08:00MercyMe - I Can Only Imagine<iframe height="295" src="http://www.youtube.com/embed/N_lrrq_opng?fs=1" frameborder="0" width="480" allowfullscreen=""></iframe>My friends, every single one of you, please listen to this song. It is one of my FAVORITE songs. I wonder would it would be like when the day comes to dance with Jesus with all my loved ones. Can you imagine that?? I can only imagine. I love every single one of you and God IS GREAT. He's the reason we are here. My heart belongs to you God. Forever and always. <3<3
<br />Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com1tag:blogger.com,1999:blog-6473575774876602989.post-17306393883182115282011-01-26T13:36:00.000-08:002011-01-26T13:49:20.414-08:00My Oh My!<div align="center"><span style="color:#003333;">So, a lot has happened since the last time I posted. My little girl turned 4 on January 12, I had to go to the Dr. for this burning, excruciating pain in my stomach. Turns out I have gasteritis. Did labs and now find out it was indeed an ulcer. Gee, I wouldn't know why I would ever get one of those. Stress maybe...um yeah. So anyways, on this medication PrevPack for a month to kill off the bacteria in my tummy. It is 4 pills in the morning and another 4 at night. 2 different types of antis, a prevacid pill. Hunter goes, "Look Mommy!! You have the same pill I take!" It was funny. </span></div><div align="center"><span style="color:#003333;"></span> </div><div align="center"><span style="color:#003333;">So, then yesterday we had to trek it up to Childrens for their normal clinic visit. Being that this is a rescehduled appt, not by my choosing, we got stuck with a time of 8am. Now, living 2 hours way, we had to leave at 5:15am to be up there in time. We ended up getting there 15 mins. early. PFTs went great. Hunters FEV1 is 93%. Better than the 85 we got at our last visit. Appt. with the Dr. herself went really well. We thought the kiddos would have labs yesterday, due to being Vit D defficiant, but they are waiting until the next clinic visit in May. Whew!! Hunter is at 79 pounds now and Ren is at 46 pounds. They are growing beautifully. Thank God.</span></div><div align="center"><span style="color:#003333;"></span> </div><div align="center"><span style="color:#003333;">Then this morning I wake up and I was getting severe stomach cramps. I mean severe. I called the Dr. and he changed me from Prevacid now to Nexium. </span></div><div align="center"><span style="color:#003333;"></span> </div><div align="center"><span style="color:#003333;">Then Friday, we have to go to an SSI meeting at 2 for Hunter to get his case reviewed. Fun fun. They were wanting statements, wages, everything, dated back to November 2009. Considering I am anal about filing and everything having it's own folder, I had everything that they are asking for. If I'm not somewhat organized, I don't function well at all. I'm nervous about this though, I don't know why. Everything's in order. I'm thinking it's because we moved and switching banks and all that stuff. I don't know.</span></div><div align="center"><span style="color:#003333;"></span> </div><div align="center"><span style="color:#003333;">Just a lot of stuff going on. I try to relax, God knows I do. But, if I do, something will be missed or something won't get done when it needs to be.</span> <span style="color:#003300;">I'm trying though.</span></div>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com1tag:blogger.com,1999:blog-6473575774876602989.post-2422916578251638852011-01-11T14:34:00.000-08:002011-01-11T14:45:19.188-08:00Please, Please Lord give me a break!!<div align="right"><span style="color:#003333;">Starting yesterday morning I have felt this pain in my upper abdomen. A fullness and it hurts. So much has been going on these past few months, that I actually think I may have an ulcer. NEVER had one before in my life. I don't know what to do. Can't afford to go to the Dr. until Friday, if it's not any better, with the copay and meds I know he is going to prescribe, so I just have to wait it out and pray it gets better. I'm tired and just want this to stop. Stress starting in October has brought me down to a level where I think it's effecting my health. If it's not one thing it's another. It's a constant of being stressed and I don't know how to deal with stress. My hubby tells me, maybe yoga. Not a good time to think of that. I'm sorry, I just want something to help me at the moment. Not really into the whole yoga thing.</span></div><div align="right"><span style="color:#003333;"></span> </div><div align="right"><span style="color:#003333;">Ren has been having a consistent cough since Friday and it was today that I called up to her Dr. to get something prescribed for her. She is now on Bactrim...again. I hate this. I really do. I wish these kids could get "sick" without antis and Drs and everything but it's not that easy when the have CF. Whatever we have to do. That is another reason, why I have to wait to go to the Dr. myself. EVERYTHING is spent on these kids and I wouldn't have it any other way, don't get me wrong. I think I am just run down sometimes. Homeschooling, treatments, meds, "normal" mom stuff and wife duties. I would rather them be at home and me deal with this than go to school and every other week have a problem like before. </span></div><div align="right"><span style="color:#003333;"></span> </div><div align="right"><span style="color:#003333;">Hunter is doing well though. I almost feel he is taking advantage of me not feeling well, and dangit...it's not fair. It's not just him, it's Ren too. They just don't want to listen, ever. I can talk to them but it's like they look at me and blow it off. I've just had it. So tonight it's a "Family talk" night with daddy and Ren especially, is NOT looking forward to it. Maybe it's because I am home all day, every day with them. Daddy does something and puts something in them (fear) that they do NOT like. It's all talking, don't get me wrong, but it's the way he comes across that I don't.</span></div><div align="right"><span style="color:#003333;"></span> </div><div align="right"><span style="color:#003333;">Not too much of a post right now as I am not feeling so hot, but thought I needed to update. I pray that if I have an ulcer, that it's not bad and will just go away. I don't know if it will without going to the Drs. I don't want to spend $60 to go. I would rather use that and buy food for the next week. I'm just stubborn like that. But I know that I am everything to these kids and without me, it wouldn't function. So, I need to take care of myself, I know. I just pray I get better before Friday.</span></div>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com3tag:blogger.com,1999:blog-6473575774876602989.post-46070851218671522982011-01-06T10:09:00.000-08:002011-01-06T10:09:16.439-08:00Josh Groban - You Raise Me Up<iframe height="295" src="http://www.youtube.com/embed/quZTdeUgiV8?fs=1" frameborder="0" width="480"></iframe>Always so beautiful. An amazing talent he has. I was listening to this on the radio while kiddos were eating lunch. My kiddos stand up and raise their hands, as in, Praise the Lord.Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com2tag:blogger.com,1999:blog-6473575774876602989.post-475145058232462952011-01-03T15:52:00.000-08:002011-01-03T15:52:18.418-08:00You Never Let Go - song by Matt Redman<iframe height="344" src="http://www.youtube.com/embed/SIAdgLR1ZGw?fs=1" frameborder="0" width="425"></iframe>Through God All is possible. Without God nothings possible. Sit back and listen. Listen to the words. I LOVE this song because it reminds me that I am not alone no matter what I may be going through. God is Here. He's waiting for YOU to trust Him. Put everything you have into Him.Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-73057158758855744162010-12-30T13:05:00.000-08:002010-12-30T13:22:14.874-08:00Looking Back 2010--WOW<a href="http://4.bp.blogspot.com/_jtFxBMJoUYc/TRz39J2R4jI/AAAAAAAAAHw/YID4vSS0IZw/s1600/kids%2Brockin%2Bit.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 150px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5556588670256013874" border="0" alt="" src="http://4.bp.blogspot.com/_jtFxBMJoUYc/TRz39J2R4jI/AAAAAAAAAHw/YID4vSS0IZw/s200/kids%2Brockin%2Bit.jpg" /></a><br /><div align="center"><span style="color:#003300;">Honestly, where does the time go? Another year gone. Kids another year older as am I. So much has happened in this last year that has brought my family through hell and back but we did it. We did it because God saw that we were going to be ok.</span></div><br /><div align="center"><span style="color:#003300;"></span></div><br /><div align="center"><span style="color:#003300;">Hunter and Ren, neither one, was admitted this year into the hospital. The first for this to happen. They are healthy, healthy kiddos. A lot of antibiotics for the kiddos, just this time of the year. </span></div><br /><div align="center"><span style="color:#003300;"></span></div><br /><div align="center"><span style="color:#003300;">Serenity, has learned so much through this year. Age 3. She looks up to her older brother for everything. "He" has the answers for everything. Not the case when they both get into trouble for doing something though, then it's all Hunter. lol Ren is starting to step out of her brothers shadow a bit and become her own person. A little girl who loves little girl things. Now, this is just recent, so I'm proud of her for just wearing a pink bow at this point. She loves painting her nails and putting on lip gloss. My little princess.</span></div><br /><div align="center"><span style="color:#003300;"></span></div><br /><div align="center"><span style="color:#003300;">Hunter has been through a lot this year himself. Age 7. He has seen his baby sister grow into a little girl who is attached to his hip. Sometimes it's good...sometimes not. He is her protector and will protect her forever. He has done unbelievably well in homeschooling. Making A's and B's. And NO momma does not go easy on him. He's such a smart young boy. He has found himself. He loves to skate and play ice hockey. Now interested in Karate. Ice hockey both kiddos love and do together but I think they will have their own sport to do as well. Hunter is a lot like daddy. Loving, giving heart, who loves God. He has been nicknamed "preacher boy". He prays all the time, especially for Ren to be good. haha I couldn't be more proud of him.</span></div><br /><div align="center"><span style="color:#003300;"></span></div><br /><div align="center"><span style="color:#003300;">Brandon and I have been through a lot this year, but have stayed strong through the hurdles. The hardest thing this last year was moving. The house we were in was mold filled. We had to get out for the kids' sake, well and ours too. Packing boxes and yet no house was even found yet. No money to move, just had what we had. God blessed us with a healthy new home and one that is even more affordable. No matter what we go through, I promise you, God has seen that we always have what we need (not what we want) and that our needs are always met.</span></div><br /><div align="center"><span style="color:#003300;"></span></div><br /><div align="center"><span style="color:#003300;">So, looking back I can say this has been a really good year. Hard, yes. But it could have been a lot worse. </span></div><br /><div align="center"><span style="color:#003300;"></span></div><br /><div align="center"><span style="color:#003300;">I have my wonderful husband, two healthy kiddos, a loving family. What MORE could I possibly want?? </span></div>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com2tag:blogger.com,1999:blog-6473575774876602989.post-25355591527751917152010-12-21T10:13:00.000-08:002010-12-21T10:13:00.093-08:00Amazing Grace ( My Chains are Gone)<iframe height="344" src="http://www.youtube.com/embed/cyFxArMeRDI?fs=1" frameborder="0" width="425"></iframe>I had to post this again. I love God and am blessed that He gave me my family and friends. Healthy kids . I love you Lord and I this song means a great deal to me personally. As I start to tear up, I know God is holding the baby that I lost, in Heaven and going to celebrate Jesus' birthday together. For all that is lost here on earth, EVERYTHING is gained in Heaven.Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com1tag:blogger.com,1999:blog-6473575774876602989.post-33327858029320111442010-12-19T14:58:00.000-08:002010-12-19T14:58:36.900-08:00Albert King / Cold Feet<iframe height="344" src="http://www.youtube.com/embed/ldsdoeW7J6E?fs=1" frameborder="0" width="425"></iframe>The Legend.Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-67903951602030892722010-12-17T09:22:00.001-08:002010-12-17T09:22:54.921-08:00<img style="visibility:hidden;width:0px;height:0px;" border=0 width=0 height=0 src="http://c.gigcount.com/wildfire/IMP/CXNID=2000002.11NXC/bHQ9MTI5MjYwNjUwNTAzOCZwdD*xMjkyNjA2NTcxODg2JnA9R29vZFdpZGdldHMuY29tJmQ9Jm49YmxvZ2dlciZnPTEmbz1hODll/ODIxZDJlM2E*Yjg*OGE*YzFhNzI*YTM5ZGMwNSZvZj*w.gif" /> <div><embed src="http://goodwidgets.com/widgets/morph.swf" name="gw263535" FlashVars="gW=263535&bC=f2f2e8&aC=4c3f45&v=1.2" quality="best" wmode="transparent" allowScriptAccess="always" pluginspage="http://www.macromedia.com/go/getflashplayer" type="application/x-shockwave-flash" width="255" height="191"></embed><br/><a style="color:#4c3f45; text-decoration:none; font-family:arial,sans-serif; font-size:9px;" href="http://www.goodwidgets.com" target="_blank">Powered by GoodWidgets.com</a></div> Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-89809533954700723612010-12-15T14:11:00.000-08:002010-12-15T14:11:35.101-08:00Albert King - 1981 - Born Under A Bad Sign<iframe height="344" src="http://www.youtube.com/embed/BKY8KIt9kqc?fs=1" frameborder="0" width="425"></iframe>This is my absolute fav Blues singer...Mr. Albert King!! I love the blues. It's so amazing how much emotion is felt through blues. My choice of music for sure!! Enjoy!!Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com1tag:blogger.com,1999:blog-6473575774876602989.post-58030858519035451072010-12-14T17:06:00.000-08:002010-12-14T17:23:12.726-08:00Clinic Visit...Not CF Clinic and What A Joke!!<div align="center"><span style="color:#330099;">So today we had an <span id="SPELLING_ERROR_0" class="blsp-spelling-error">appt</span>. about an hour away with the kids' "new" pediatrician. Even though we live that far away from their pediatrician, we opted to stay with this clinic being the nurses and <span id="SPELLING_ERROR_1" class="blsp-spelling-error">Drs</span>. know them and have known both the kids since day 1. </span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">Today was a little interesting though. We have seen this Dr. before when their regular Doc was out, so today we had to spend $30 for the kids to be seen by him for their yearly check-up. I'm sorry, but when the kids are being seen every 3 months at the CF clinic, the last thing I'm concerned about is their <span id="SPELLING_ERROR_2" class="blsp-spelling-error">peds</span> office and being seen once a year.</span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">Hunter asked me 3 times last night if they were getting shots at all. I said no. The fear that these kids feel with <span id="SPELLING_ERROR_3" class="blsp-spelling-error">Drs</span>. is something I will, nor most, will ever comprehend. I told them both that all we needed to do was talk. Their other Dr. decided to retire. 2<span id="SPELLING_ERROR_4" class="blsp-spelling-error">nd</span> one in 2 years.</span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">This Dr. is <span id="SPELLING_ERROR_5" class="blsp-spelling-corrected">definitely</span> one that I don't prefer, but we need one so insurance will cover the kids' <span id="SPELLING_ERROR_6" class="blsp-spelling-error">meds</span>. Then a state program picks up the remaining copay, so that way there their <span id="SPELLING_ERROR_7" class="blsp-spelling-error">meds</span> don't cost a penny for us.</span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">This Dr. has told me many times that I know more than him. Um...yeah, these ARE my kids. I know CF Dr. He tells me something that we should be doing but I will not do because we know what is best for our kids. I just nod. Uh huh, <span id="SPELLING_ERROR_8" class="blsp-spelling-error">ok</span> Doc. </span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">He told me today that my kids are on the verge of being overweight based on their <span id="SPELLING_ERROR_9" class="blsp-spelling-error">BMI</span>. Excuse me Dr., my kids have CF and I will keep their weight on and up as long as I humanly can. My kids are not overweight, I will never see that. They're strong and they are fit and they need the "back-up fat" as I call it in case of any hospital stay or sickness. I won't back down, I don't care who it is. It upsets me a little because my kids understand what being "overweight" is. Can you please NOT say that while my kids are in front of you?? You don't understand, not one bit. <span id="SPELLING_ERROR_10" class="blsp-spelling-error">Ren</span> is 45 pounds and 3 and Hunter is 7 and weighs 77 pounds. My kids eat, nothing wrong with that. Period. But they are NOT fat.</span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">This visit was a waste of time and money. They just wanted our money for the copay for the kids. They are in need of money. My kids are fine and healthy and here this Dr. that knows nothing about CF is telling me what I need to do. I just wanted to go.</span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">So, the kids are fine. Went to my parents house after and saw my mom and my older brother which was nice. We are always remembering the old times and I miss the fact that we all live so far apart. But I guess that's life. At least we got to have fun with Uncle Dan before seeing him again on Christmas.</span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">A very tiring day for us all and I think we are all just going to call it an early night. A lot of driving as it is always. But at least, if anything, the kids got what they needed and did need this <span id="SPELLING_ERROR_12" class="blsp-spelling-error">appt</span>. for their <span id="SPELLING_ERROR_13" class="blsp-spelling-error">meds</span>. </span></div><div align="center"><span style="color:#330099;"></span> </div><div align="center"><span style="color:#330099;">Day done and goodnight all!!</span></div>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com5tag:blogger.com,1999:blog-6473575774876602989.post-72788891454083744102010-12-09T16:28:00.000-08:002010-12-10T13:58:28.130-08:00Some Good News At Least<span style="color:#003300;">Hunter has been on Omnicef for two weeks now with this stuffy nose, non-draining, thing he has going on. The antibiotic FINALLY started to kick in within the past few days. Along with the antis come treatments and allergy meds as well that I think has helped. So that is GREAT news for us.</span><br /><br /><span style="color:#003300;">Serenity, I really don't have much to say about her but that she is doing really, really well. </span><br /><br /><span style="color:#003300;">Homeschooling is still a priority in this house. It has to be the best decision we have ever made. Hunter is scoring A's and B's in Math, Science, Grammar, Bible, and History. It makes me so happy that he is doing so well.</span><br /><span style="color:#003300;"></span><br /><span style="color:#003300;">Got a call this morning from the kids' nutritionist with the results of their labs they had done a couple weeks ago. Both kids are showing low levels of Vitamin D. Out of 40, Ren scored 35 and Hunter scored 36. So now they are taking supplements for that. One more thing added to the meds list. I guess I'm just thankful that it wasn't anything major. ALTHOUGH, their next visit, which is January 18, they need to do labs again. Not good. It's so hard with all the screaming, kicking, and hitting oh and Hunter praying to Jesus that he saves him. He was crying out to Jesus that He saves him. It was the funniest thing in the world, but shows me how much he still, even at 7, how hard it is for him to be doing all of this. </span><br /><span style="color:#003300;"></span><br /><span style="color:#003300;">I've just been so unbelievably tired this last week for some reason. I could just sleep. I just WANT to be able to sleep. So much going on. I just keep going and hubby is the sweetest thing on the weekends to let me sleep in. He knows what I have to do during the week with the kids, and maybe I'm just exhausted by the time Friday comes. I don't know. Some days are good and some are not, as with most moms. I just have to snap out of this funk I'm in and turn things around, which thanks to my mom and talking to her I am doing.</span><br /><br /><span style="color:#003300;">My kids are doing well. Hubby is well as am I. What more can I ask for? Well...sleep maybe.</span>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-57282766311742919762010-12-09T08:37:00.000-08:002010-12-09T08:37:10.609-08:00Alvin and The Chipmunks: The Christmas Song<iframe height="344" src="http://www.youtube.com/embed/2dnrosVyamY?fs=1" frameborder="0" width="425"></iframe>Love Love Love it!!Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-50351717512546568742010-12-07T14:23:00.000-08:002010-12-07T14:40:30.001-08:00Time and Change<div align="center"><span style="color:#000099;">Where does the time go? Life seems to be getting more and more crazy. Treatments, meds, homeschooling, feeding them, then before I know it it's dinner time and there goes another day. These days are going by way to fast. My kids are growing up right before my eyes and the only thing I ever want them to remember is how mommy worked so <span id="SPELLING_ERROR_0" class="blsp-spelling-error">stinkin</span> hard for them and for them to be proud of me. But, it seems like there is just not enough time in the day to "just play". So, that's changing. I'm finding more one on one time with the kids and it's truly amazing how they act after. It's almost like a changed child. I think all the acting up was them wanting my attention. Although I give it to them in many different forms during the day, it's never just "mommy and me." It's nurse or school teacher. The thing I realized was that it's never to late to make that change. Yes, the <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">light bulb</span> came on for me!! I get so wrapped up in the things the kids need and lose focus on what they are really wanting from me. It's HARD!!</span></div><div align="center"><span style="color:#000099;"></span> </div><div align="center"><span style="color:#000099;">On a different note, Hunter is doing better. I think, well I know, the antibiotic (<span id="SPELLING_ERROR_2" class="blsp-spelling-error">omnicef</span>), has finally kicked in for him. And with the help of one of my really good friends (Melissa), your advice on getting the <span id="SPELLING_ERROR_3" class="blsp-spelling-error">nite</span> light <span id="SPELLING_ERROR_4" class="blsp-spelling-error">vicks</span> vapor has been going every night and now Hunter is able to sleep a good nights sleep. <span id="SPELLING_ERROR_5" class="blsp-spelling-error">Ren</span> is jealous that she doesn't have one. Thankful she doesn't need it at this point. He wakes up every morning and just says "I got sleep last night mommy." Thank God! Thanks girl!!!</span></div><div align="center"><span style="color:#000099;"></span> </div><div align="center"><span style="color:#000099;">Christmas is quickly approaching and I just want to remind everyone as I have to remind myself, it's NOT about the gifts or the number of gifts. The true meaning of Christmas is when God Himself gave us the gift of Jesus. That's all. Now, of course my kiddos are going to get something, don't get me wrong, but not so much this year. They will know and understand what God has given to us to save us, Jesus. We lose focus on that this time of season. I just want people in the back of their minds to keep Jesus in it and rell your children about the true meaning of Christmas. One year, Hunter and I even mad a birthday cake for Jesus!! It was the best thing. </span></div><div align="center"><span style="color:#000099;"></span> </div><div align="center"><span style="color:#000099;">I just want to thank everyone for their support when I am going through a really hard time. I have taken on an awful lot and trying to constantly change everything as my kids are changing. Homeschooling takes a lot. I HAVE to make sure and you better know I don't go easy on my kids when it comes to school. Hunter has been grading A's and B's, couldn't be more proud of him. Everything just takes such a toll on me that I am tired all the time and hoping for Friday when it's just Monday. I need to change my outlook on that as well AND I will.</span></div><div align="center"><span style="color:#000099;"></span> </div><div align="center"><span style="color:#000099;">I love my babies and I absolutely adore my husband who has stuck by me through the very thickest of thick and the thinnest of thin. Always there to provide and make sure that we have what we NEED not really WANT. He's amazing and anyone would truly be lucky to know him personally. I love you Brandon!!</span></div>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com1tag:blogger.com,1999:blog-6473575774876602989.post-43743393669336401982010-11-29T14:21:00.000-08:002010-11-29T14:51:34.279-08:00What the H**l is Going On!!<div align="center"><span style="font-size:130%;color:#000099;">So in the last post, I posted about the nasal problems we have been having with Hunter. His Dr. says it's "normal" with having CF. If it's not the gut or the lungs, now we have the nose?? </span></div><div align="center"><span style="font-size:130%;color:#000099;"></span> </div><div align="center"><span style="font-size:130%;color:#000099;">So he was put on Omnicef, because of a possible sinus infection. He has been on it for a week now with no luck. First they said allergies, ok I can deal with that. But he's taking zyrtec, singulair, AND nasacort. This happens like every single year. I called the nurse this morning and she called me back this afternoon. I explained EVERYTHING that was going on and what his Dr. was wanting to do if this antibiotic didn't help. I requested maybe a different antibiotic. He can't go back on bactrum, since he's been taking it so much. I just don't understand it. She said that she would talk to the Dr. and get back to me after speaking with her. Surprise, surprise, no call back. I called her and left another message. I'm getting mad.</span></div><div align="center"><span style="font-size:130%;color:#000099;"></span> </div><div align="center"><span style="font-size:130%;color:#000099;">I also spoke to the nurse about both of the kids' culture results. Hunters, suprisingly, came back normal but now Ren had something that showed up. Don't ask me the name, all I know is that it starts with an S and she had it last September too. So she may be going on something too. It's the time of year, it's the season. It hits these kids like you wouldn't believe. But, then again, I'm sure most of you completely understand.</span></div><div align="center"><span style="font-size:130%;color:#000099;"></span> </div><div align="center"><span style="font-size:130%;color:#000099;">When he breathes through his mouth, he's ok. But when he breathes through his nose, it sounds so stuffy. Nothing drains from it though. It sounds like it is so impacted with "junk".</span></div><div align="center"><span style="font-size:130%;color:#000099;">Please, anyone that has dealt with this, please let me know.</span></div><div align="center"><span style="font-size:130%;color:#000099;"></span> </div><div align="center"><span style="font-size:180%;color:#000099;">I HATE THIS. I HATE CF.</span></div>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com1tag:blogger.com,1999:blog-6473575774876602989.post-45979274603385850802010-11-26T18:37:00.000-08:002010-11-26T18:37:38.620-08:00Kutless - Strong Tower<iframe height="344" src="http://www.youtube.com/embed/tOxeyj7itJE?fs=1" frameborder="0" width="425"></iframe>Need I say more?? Thank you Lord for being my Strongtower. No matter what!!! I love the Lord and not ashamed to share His word or music!!Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-74724606193412058302010-11-25T18:09:00.000-08:002010-11-25T18:30:25.648-08:00So Thankful!!<div align="center"><span style="color:#990000;">Plain and simple. </span></div><div align="center"><span style="color:#990000;">I am thankful for my wonderful little family, my mom and dad, my brothers and extended family. My kiddos are healthy, had a great turkey dinner tonight!! Even though my brother and his fam had been sick and my dad came down sick, it was just us. But... it was awesome!!! I made the turkey and garlic and cheese mashed potoates, we also had green bean casserole. YUM!! </span></div><div align="center"><span style="color:#990000;">I'm just thankful for my kids so much and my husband. I love them with all my heart.</span></div><div align="center"><span style="color:#990000;">And I thank the Lord above for providing us with the things we need, not necessarily want. He is good all the time.</span></div><div align="center"><span style="color:#990000;">Hope everyone else had a wonderful turkey day!!</span></div>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-23916328065297542932010-11-23T16:06:00.000-08:002010-11-23T16:10:37.784-08:00Cystic Fibrosis - Awareness<iframe height="344" src="http://www.youtube.com/embed/Has3ddC96XA?fs=1" frameborder="0" width="425"></iframe>God Bless my babies for being so strong and fighting the fight. God Bless all the thousands of others out there, young and old, for fighting the fight. We will find a cure. We will. God has a special purpose for my kids. God has a special purpose for everyone. They are amazing and I envy them. I look up to my kids even though they look up to me. They are both so much stronger than I will ever be. <br /><br />I love you Hunter and Ren with all my heart. <br /><br />Love, MommyEricahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com2tag:blogger.com,1999:blog-6473575774876602989.post-9703376091400552702010-11-23T15:18:00.000-08:002010-11-23T15:31:55.631-08:00What A Day!!<div align="center"><span style="color:#000099;">So a lot has happened since I was last online. We moved and love the new place. Mold free!! </span></div><div align="center"><span style="color:#000099;">I'm still homeschooling, potty training Ren now and she is doing so well. She's almost there. And just busy being a mom, adminstering meds and doing treatments.</span></div><div align="center"><span style="color:#000099;"></span></div><div align="center"><span style="color:#000099;">Today was the kids' CF appt up in Chicago. 8am appt. which meant leaving here at 5:30. The only reason I made it this early was because it was a reschedule and this was the only time available before the Thanksgiving. Blah! </span></div><div align="center"><span style="color:#000099;"></span></div><div align="center"><span style="color:#000099;">Hunter and Serenity both did their PFT's first and they both did really well. Talked to their Dr. about a problem with Hunter that has been an issue for the past couple of months. His sinuses have been HORRIBLE!! He's on the nasacort, zyrtec, and on singulair. His Dr. seems to think their is something going on, maybe a sinus infection. He's now on Ominef and praying this knocks it out of him. She is going to check his culture and see if pseudemonous is growing, and of course, if that's the case, he will be put on Tobi. But if the culture comes out negative and the anti isn't working, she will switch antibiotics. We have a return appt. in 6 weeks and if he is still not any better, she will refer us to an ENT. Then come to find out that his results from the PFT went from the mid 90's like they normally are down to 84. I'm concerned but know and was reassured that it could very well be something going on with his sinuses causing him to work harder when he breathes and affect him. His nose sounds full, but it is so dry. Nothing will come out. So, one step at a time. The last time he was on Tobi was when he was 3 months old. I remember it being VERY time consuming though.</span></div><div align="center"><span style="color:#000099;"></span></div><div align="center"><span style="color:#000099;">Ren is doing extremely well. Both kids are in the 95% on their growth charts. I'm a proud momma and proud of us parents that kick butt to keep our kiddos at their very best.</span></div><div align="center"><span style="color:#000099;"></span> </div><div align="center"><span style="color:#000099;">And at the very end of the appt. we had labs. Not good. Ren had to get poked twice. Hunter started crying and screaming because Ren was. He was yelling at the lady "She's my best friend!!" Then when it was Hunters turn, when she got the needle in, he was calling out Jesus' name. "Jesus!! Jesus!!" Wanting Jesus to save him. I had to chuckle but then got "the look" from Hunter because he saw me smile. Yikes. The lady asked if he is a kicker and of course I said yes. I wonder...will they ever be ok with any of this stuff in the future?</span></div><div align="center"><span style="color:#000099;"></span> </div><div align="center"><span style="color:#000099;"></span> </div><div align="center"><span style="color:#000099;">I will post a lot more now that I am back online. Hope all is well with everyone!! Love to all my friends and family!!</span></div>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com0tag:blogger.com,1999:blog-6473575774876602989.post-51100445410075754472010-09-29T13:17:00.000-07:002010-09-29T13:33:05.909-07:00Still In The Process<div align="center"><span style="color:#006600;">So, we have been to about 10 houses now, numerous phones calls made, and we are still looking.</span></div><div align="center"><span style="color:#006600;">Ours boxes are getting full, no new house yet.</span></div><div align="center"><span style="color:#006600;">The kiddos are excited, as I would be too if I were a kid, to get out and move to another house.</span></div><div align="center"><span style="color:#006600;">Something new. Something Healthy.</span></div><div align="center"><span style="color:#006600;">My nerves are getting the best of me right now. Stress/anxiety, frustration like you wouldn't believe.</span></div><div align="center"><span style="color:#006600;">Trying to get everything in that I need to during the day and still needing a house to live in within a couple of weeks.</span></div><div align="center"><span style="color:#006600;">It's so frustrating and I'm so stinkin tired.</span></div><div align="center"><span style="color:#006600;">But...I know what we need to do so I keep on keeping on.</span></div><div align="center"><span style="color:#006600;">We have a house tonight we are to go see at 6 and Brandon and I have been praying so hard that this is "the one." It could be. Brandon took pics of the house after work one night and the outside is very nice. I just pray the inside is just as nice.</span></div><div align="center"><span style="color:#006600;">I just want the looking to be over.</span></div><div align="center"><span style="color:#006600;">This weekend we are meeting with our landlord and will be telling him why we are leaving and on a short notice. It helps that we are on a month to month lease too. Being that he lives next door, we are going to ask his wife come too. Ask them if this is something acceptable that they would live in. I think NOT. Frankly, I don't really care. It's NOT acceptable to me.</span></div><div align="center"><span style="color:#006600;">My kids need to be healthy. I know we are doing the right thing. I just wish it didn't take so long.</span></div><div align="center"><span style="color:#006600;">The Lord has not failed us yet. The Lord will NOT fail us. He knows where we need to be and where we are going to be. I guess I would just like a "short-cut" and for Him to just tell me and skip all the other nonsense. If it was only that easy. That's where trust and faith come in. We trust Him, I trust Him.</span></div><span style="color:#006600;">Please pray for us.</span>Ericahttp://www.blogger.com/profile/00675807278635914551noreply@blogger.com3