So, I have not been on in a while here posting, nor Facebook. I have been going through so much lately that I feel like I am just so mad and angry at CF. More now than ever.
Hunter has been having issues with his sinuses for so long. Antis that have been presribed for the past have usually taken care of the stuffy nose thing. Nothing coming out when he blows it, no other symptoms, nothing. So, last Friday we took him into the ENT to finally figure out what has been going on. Hunter, since last October has been on antis every month for his sinuses. Nothing's worked. He had a CT scan of his sinuses on Friday and was told to call today to get the results. I did, first thing I did this morning. I called and the nurse says, "I will have to have the Dr. call you." My question then was, "What's going on?" She said " It's showing severe sinus inflammation and the Dr. will call you today to let you know what to do." "Um, okay."
4:00 came and I called them again. I told the nurse to make sure the Doc gets this message as well as the other one because I WANT answers.
So the Dr. calls back at 4:30 and says that Hunter has sinus disease which is basically saying sinus inflammation. He said that he has so much inflammation (gunk) in his sinuses under his eyes that the best thing to do would be surgery. My heart dropped. He said being his past and antis not working previously, that this would be the best option. It would be an incision, for under his eyes, where all the gunk is at. He said it's like us doing CPT on his lungs for the mucous but the mucous is in his sinuses. What the hell is going on.
Hunter has always been so healthy when it came to CF as is Ren. This is something that I know may be minor to some, but major to me. I hate CF. It's just one more thing that I feel CF is trying to control, and it WON'T!
Rens on another anti for this persistant cough that she has. I just want CF to go away already. Please, God, just take the CF away.
Going to be strong for Hunter during this time, although, I want to cry and punch the friggen wall at the same time. But, I HAVE to stay strong.
The nurse is going to call in a couple of days to set the appt up for his surgery. Outpatient, should only take a couple of hours and will be able to go home. Thank God for that.
Prayers. Simply said...we need your prayers.
I always tell the other mommas to stay strong but now I have to take my own advice.