Thursday, July 8, 2010

On A New Venture

So, I have been thinking about an idea that I have had for a few days now. Only mentioned it to my parents and hubby. I am looking into and making contacts on how to get a commercial done for Cystic Fibrosis. I have prayed about it and really put some thought into it, being that life is so busy right now for me as it is. It's been pressing on my heart and I feel deeply that this is something I am meant to do. It's something that I feel people need to be aware of more so than people already do. And not very many know about it. I have ideas and can see in my mind how I want it to be done. I just pray and pray now that someone will say yes as far as taping the commercial itself for charity.
We need awareness. We need funds for research. We NEED the faces all around the world to be shown on this.
I am just asking for prayers and guidance that God takes me into the right direction and to come into contact with people that have light and open hearts to do this for the 70,000 people with CF out there that need to be heard.

On a medical note regarding the kids: Hunter is coughing now but his throat is getting better and better every day.
Serenity is still having her coughing episodes but still doing well. We did 3 treatments yesterday and doing another 3 today. Have to get the junk out of them.

Tonight is hockey practice and kids are excited about that. I actually have to contact the person that is willing to do private lessons with them and set something up for next week.

Feeling a little tired but so much to do. It's what keeps me going! :)

Tuesday, July 6, 2010

Clinic Visit Today

Woke the kids up this morning around 6:30 to get ready and leave by 7:30 to drive 2 hours up to Chicago for their clinic visit at Childrens. I was falling asleep in the van due to me only getting about 3 hours of sleep last night.
NOTE TO SELF: Do NOT drink Pepsi before going to bed.
We made it right on time and checked in. Went and had the kids do their PFT's.

Hunter Stats:
Lung function was 94%
In the 98% for his BMI

Ren Stats:
In the 99% for her BMI
Spo2: 97

So, we thought the kids were going to do labs today and we were so happy to find out that we could wait until the next Clinic visit in October. YAY!! It was 3 hours that we were in there for and then their Dr. tells us, "Well, since you are already here, Ren needs an updated chest x-ray." Ok I thought...better than labs. An hour and a half sitting in the waiting room for our number to be called. Ren did so well though when it came time for her to do it.
Needless to say, we were ready after that to just go. We were tired and so hungry. By the time we got home, I think it was around 4pm. So good to be home.
All in all, glad we went today, got it done with great outcomes.
Thank goodness for portable DVD players and McDonalds!!

Monday, July 5, 2010

Some Great News!

Yesterday was a really great day for us! We went to a new church and we ALL felt really comfortable and at home there. Hunter had a blast in his Class and met some new friends. Serenity, being that her eye was still really swollen from the bee sting on Saturday and doped up on Benedryl went with us into "Big Church" and did really well for us. We brought a coloring book for her and that kept her busy for the most part. She was clapping and singing to the music, it was great. August 12, Chris Tomlin is coming to our church for a concert and cant wait!! Love him so much.
Brandon posted on Craigslist his car that he was trying to sell and got 11 hits for it. We had put so much money into his car and then to find out it had a cracked engine. We just couldnt afford 3000 to put into it after what we already did. He sold it last night!! We are so happy and we can put that money towards another car for him and I can get my van back!
Health wise for the kiddos:
Serenity is doing a lot better. She is still on her antibiotic for her cough but doing well.
Hunter's throat still hurts being that he has strep. I really dont know if the antis are working or not. Going to give it today and if not any better, I will ask the Dr. for a different antibiotic.
We have our regular clinic visit tomorrow up at Childrens so that will make for a very long day. Labs this time and it's going to be hard, considering Hunter pushes the Dr. just for a throat culture.
I will update tomorrow on the kids and the clinic visit.