Thursday, December 30, 2010
Tuesday, December 21, 2010
Wednesday, December 15, 2010
Tuesday, December 14, 2010
Thursday, December 9, 2010
Serenity, I really don't have much to say about her but that she is doing really, really well.
Homeschooling is still a priority in this house. It has to be the best decision we have ever made. Hunter is scoring A's and B's in Math, Science, Grammar, Bible, and History. It makes me so happy that he is doing so well.
Got a call this morning from the kids' nutritionist with the results of their labs they had done a couple weeks ago. Both kids are showing low levels of Vitamin D. Out of 40, Ren scored 35 and Hunter scored 36. So now they are taking supplements for that. One more thing added to the meds list. I guess I'm just thankful that it wasn't anything major. ALTHOUGH, their next visit, which is January 18, they need to do labs again. Not good. It's so hard with all the screaming, kicking, and hitting oh and Hunter praying to Jesus that he saves him. He was crying out to Jesus that He saves him. It was the funniest thing in the world, but shows me how much he still, even at 7, how hard it is for him to be doing all of this.
I've just been so unbelievably tired this last week for some reason. I could just sleep. I just WANT to be able to sleep. So much going on. I just keep going and hubby is the sweetest thing on the weekends to let me sleep in. He knows what I have to do during the week with the kids, and maybe I'm just exhausted by the time Friday comes. I don't know. Some days are good and some are not, as with most moms. I just have to snap out of this funk I'm in and turn things around, which thanks to my mom and talking to her I am doing.
My kids are doing well. Hubby is well as am I. What more can I ask for? Well...sleep maybe.
Tuesday, December 7, 2010
Monday, November 29, 2010
Friday, November 26, 2010
Thursday, November 25, 2010
Tuesday, November 23, 2010
I love you Hunter and Ren with all my heart.
Wednesday, September 29, 2010
Monday, September 27, 2010
Tuesday, September 21, 2010
Sunday, September 19, 2010
Thursday, September 16, 2010
Tuesday, September 14, 2010
Friday, September 10, 2010
Tuesday, September 7, 2010
Thursday, September 2, 2010
Tuesday, August 31, 2010
Monday, August 30, 2010
Sunday, August 29, 2010
Although this video brought tears to my eyes as I was watching, I KNOW for a fact that my Good Lord and Savior will bring us a cure for this disease. I have no doubt in my mind. I post these videos to bring awareness as to what Cystic Fibrosis is and what we go through on a daily basis. Help us find a cure for CF. Please go to CFF.Org and donate anything you can to go to finding a cure for the thousands of innocent children and adults suffering from this disease. Including my two children.
Friday, August 27, 2010
Thursday, August 26, 2010
Tuesday, August 24, 2010
Monday, August 23, 2010
Friday, August 20, 2010
Thursday, August 19, 2010
Wednesday, August 18, 2010
So school has officially started. Started this last Monday. The kiddos are having such a great time with it as am I. Serenity has been really great about giving me the time I need to be with Hunter to teach him. I just give her something to do, as in her own homework. She loves to be included, as any child would be. Sometimes, it gets a little trying, but that's when I realize I need to find a different or new way of teaching.
Tuesday, August 17, 2010
My kiddos are my life. I think that if anyone knows me or knows of me, they know this. Although I am having a hard time balancing treatments, homeschooling, the house, laundry, etc... these times are to be cherished and I don't need a clean house to do this. Cleaning is saved now for the weekends, and lucky daddy!! :)
I hope to figure out how to post video on here, because I just can't and photos (slideshow), but I will. I want to share these moments with everyone in the world.
These are two very special kiddos that God has blessed me with and it would be selfish of me not to let the world see this.
Time to be a T-Rex!!
Monday, August 16, 2010
Hunter was diagnosed at 3 months with CF but then he was diagnosed with something called Duanes Syndrome as well.
Duanes Syndrome affects the eyes. The muscles in the eye do not move the way that they should. This is occurring in his left eye. Noticed this when he was a baby, but was always told that it is normal for his eyes. They said that since he was still so young, his body needed to basically grown into itself. Well, it continued to happen. Hunter was in therapies, so many until the age of 3. Speech therapy, Developmental Therapy, and Sensory Therapy. The therapies seemed to be working, so I thought.
The speech therapy was great for him. He still has a hard time pronouncing certain letters in a word, but what kid doesn't? Or adult for that matter? Homeschooling gives me that extra time with him to work with him.
He still has sensory issues. BIG TIME. I have never seen a child scream and run when he sees a fly. Not just a little scream, SCREAMING, like something terrible has happened. We were in a restaraunt one night, the server sat us at a table by the window. Big mistake. The whole restaraunt turned and looked--he was screaming so bad we had to change tables. Is this normal? Will he ever get passed this? He is starting to affect Ren now. It's hard for because just to get in the van is a chore in itself anymore. God forbid there be a fly or mosquito in there, all hell breaks loose. No one can really understand the extent of this unless they see him going through it.
So, back to the Duanes Syndrome. Most people look at it as if it's lazy eye, but it's much worse than that. He has it in his left eye to where the muscles are so tight that when he looks to the right and up, his eye shoots up. He has to compensate for reading, playing, watching tv and position his body so. He's doing well with it to this point, but if it gets a lot worse, he will need surgery. Having surgery on the eye scares me. What if something goes wrong? What if he's worse than before it? I don't know, all these thoughts run through my mind.
His original eye Dr. last year wanted to do surgery on him that following week. We went to Childrens Hospital where they get their CF care and the Dr. there said it wasn't necessary at this point. It would be more cosmetic than anything. We see his eye getting worse when he goes through a growth spurt. Thank God for second opinions and a mothers gut instinct.
We have this Friday another routine check-up up at Childrens for Hunters Duane Syndrome. I'm praying all goes well and ask for prayers too.