Saturday, July 31, 2010


Anything to make my kiddos happy. As of today, and I am living for TODAY, life is good. My kids are healthy, going to the air show tomorrow, and spending time with hubby tonight. What more can I ask for. More to post tomorrow as today was none the less "normal". Besides the treaments and the meds. Love all my family and friends.

Friday, July 30, 2010

A 'Best' Hospital for Cystic Fibrosis Kids - US News and World Report

A 'Best' Hospital for Cystic Fibrosis Kids - US News and World Report

Sleep Tight Goodnite Bite

My daughters little saying as she goes to bed. She took it from Sleep Tight Don't Let the Bed Bugs bite! Last night was quite the night. Brandon had to work the midnight shift so he would be able to go to the Rockford Air Show with us this afternoon. A very long night for me to start. Laid Ren down, then Hunter. Then Ren again and then Hunter again...and again. I felt like I was going back and forth all night. Until 11 when I went in to check in on them and they were sound to sleep.
When you look at your child as they are sleeping, I swear you see them in a whole new way. So peaceful and innocent. Dreaming princess dreams and flying fighter jets. It seems as if all the wrong they did during the day didn't even matter anymore. My kids are tucked in. Safe and sound.
The kids have been quite the handful lately and makes it even harder when Brandon is working and I have to do it by myself. It makes me, honestly, give single moms out there a lot more credit. Especially if they take care of little ones at home with a condition.
I am just thankful that this is a very rare thing that I do it by myself and I do have the help of Brandon. Just for sanity sake at night time.
I've learned to kinda keep that saying, "Don't sweat the small stuff" in tha back of my mind. Things that happen during the day are bound to happen. But at night, when you see your little ones sleeping so peaceful and sound, I just thank God that they are here at home in there beds, snug as a bug.
As my daughter would say after tucking her in, sleep tight goodnite bite. Life IS good.

Thursday, July 29, 2010

The Guessing Game

Yesterday was going good. Kids feeling great, no belly aches-no headaches. We left for hockey practice last night and when we got into the van after the kids were done, Hunter started to get sick. His face was flush, he was sweating profusely, complaining of his belly hurting now and his head. It's like, What the heck happened?
All through hockey he was fine.
Had to pull over twice to let him out of the van, due to the bag we had in there having a HOLE IN THE BOTTOM!! Smart huh? Check the bottom of puke bag before it's needed.
So we get home and he's no better. He goes to lay on the couch and daddy takes the stethoscope and makes sure he hears movement in his belly to make sure he's not getting backed up. He falls asleep on the couch, no dinner, nothing. Not normal for Hunter. Exhausted.
We take him up and lay him down. He throws up again. What is going on?? All these thoughts race through your mind.
Why is he throwing up? IS he getting backed up? Is he sick with a bug? Why did he shake and get all sweaty? Why was he getting headaches every day?
It's all a guessing game, especially when your child is just crying and complaining of everything hurting. Trying to figure out what is going on so you can help.
He woke up this morning, belly still a little upset. He ate very little breakfast but was able to keep it down. Have the windows open-fresh air. belly and no headache. Poof gone.
I'm not complaining, praise God, but the heck happened?? Was it the air conditioning? Was he overheated?

Hmmm... the guessing will continue .

Wednesday, July 28, 2010

CF Won't Run Our Life!!--Being Grateful

I think it's just busy, busy, busy and maybe it's getting to me? I don't know. I could just crawl into bed and sleep for a while. I can't stand not being busy though. It, in a weird way, keeps me going and going.
Kids are doing treatments now and as I look at them, I love them so much. I am grateful that my kids are healthy. I am grateful that my kids aren't in the hospital. I am just grateful to have them to hold and cuddle and give kisses to. I am grateful to be able to discipline them. I am just grateful that God has blessed me with these kids. The CF could always be worse for them and they could be going through rough times, but I am so grateful that even though we have times where we do have to go to Childrens or bumping up the lax, that it doesnt last for too long. It's able to be controlled.
Growing up I always imagined having children. Always saw healthy kids being born. Very rarely did I ever see any kids with any type of disability or disease. I thought that people just had healthy kids. I had always heard that being a mom was a hard job. But honestly, until you have a child with a disease that takes your whole day TO keep healthy and give meds so they can eat, no one will ever understand how hard it is for us moms who do this on a daily basis.
But to look at my kids, I see them. I don't see CF. I know it's there, but we are fighting it and my kids live a normal life. Just have to re-adjust it for some things that's all.
There will be a cure one day and my kids will be cured. I know God is good and He does miracles. I thank God for keeping them healthy and pray that He continues to watch over them.
I could have lost both my children-Hunter once as well as Ren. My kids are miracles and a true gift from God. Thank you Lord for trusting me to be the mom You know I am and to take care of your children.

Tuesday, July 27, 2010

Moms Are So Busy

So yesterday was a good day. For the most part. Hunter has been complaining of an awful lot of headaches and his belly hurting. My first thought...getting backed up. His headache got better but his belly was hurting all day until this morning.
Last night, the kids had hockey practice, their first one-with a personal coach. What a difference it made. They are going twice a week now. Our next session is tomorrow night. They are so excited.
But this morning, Hunter slept until 8:45, which is anything but normal. He's an early riser. I was going to give him until 9am to wake up but he woke within that time. Being that he still had not stooled, but only once yesterday, I loaded him with lax today. It's helped and he feels so much better.
When the kiddos were on antibiotics, I backed them off of the lax because it caused diarrhea. They were doing good for a while after they finished the antis but I know now, that they need to be at what they were before. They both are on 3 capfuls of miralax a day.
Sometimes, which is really hard for me, Hunter pretends he is sick. I'm guessing for attention. Ok, so with a mom that isn't dealing with their kids having a disease, it may not be as big of deal. But, you dont do that when you have CF. Brandon and I explained the story of the "Boy Who Cried Wolf", he got it and understood it, but how does a mom know if their kid is telling the truth? From a simple headache to seriously being under the weather.
So, I just treat it as though he is telling the truth and give him what he needs of course. But now I see Ren, pulling some things. Whenever Hunter needs tylenol, she all of a sudden gets a headache or something hurts, or her tummy hurts. It really is hard.

Sunday, July 25, 2010

What a Wonderful Day!!

Today started out like any other Sunday. Wake up early, get breakfast in for the kiddos and us, take showers, and go to church. Today seemed somewhat different though. Looked so forward to going to church and wondering what the topic was going to be about today.
"What Lies Within". Being hurt and damaged by people but being able to cut the rope, forgive, and move on with my life even if that means the person that caused the damage never took responsibilty.
Quoted by Ralph Waldo Emmerson "What lies behind us and what lies before us are tiny matters compared to what lies within us."
Being damaged happens to everyone, by someone or something. It just depends on how you deal with the situation and let go. I learned today that if I/we are damaged, we can justify the "no relationship" with that person. But to forgive that person is the main obstacle that I have to deal with. Very touching and will be reading up on verses 2 Samuel 13-19 this week that tells about King David and his family. Very weird as it is almost like a soap opera, but it's amazing of how things back in that time, are related to every day life now.

After church we came home, ate lunch, and my parents came over. It was so great to go shopping with my mom and Serenity while the boys stayed home. Bought a lot!! Brandon just smiled. I don't get to do it very often so when I do, I go ALL out. I at least buy something for him. :) LOL

Everyone is exhausted after today. I think it will be an early night. Brandon just took the kids to WalMart to pick up a few more things for this week and I actually get alone time. It's so quiet, it's almost weird. But I like this. I need this time. More.

Kids start their personal hockey training tomorrow night. Mondays and Wednesdays for both kids. Gonna get expensive, but honestly, I dont care. It's something they love and something they are good at and I can't wait to see them grow. Excited about that starting.

Tomorrow starts a whole new week and we will see what comes upon us. I know that with the Lord by my side, it's going to be a great week!!