Our Journey--65 Roses

Friday, July 30, 2010

A 'Best' Hospital for Cystic Fibrosis Kids - US News and World Report

A 'Best' Hospital for Cystic Fibrosis Kids - US News and World Report
Posted by Erica at 8:22 AM
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Medications

Hunters Meds

**ADEK vitamin
every morning


**Vitamin D Supplement
once a week


**Zenpep 15's
5 with every meal-3 with snacks

**Prevacid
2 30mg capsules twice daily

**Florastor
twice daily

**Miralax
2 caps per day

**Zithro
Mon, Wed, Fri

**Pulmozyme
once a day

**Albuterol
twice a day


**Azelastine Nasal Spray
one squirt in nose twice daily


Serenity Meds


**ADEK vitamin
every morning

**Zenpep 10's

5 with every meal-3 with snacks

**Prevacid
30 mg capsule once daily


**Florastor
twice daily


**Miralax
2 caps every day

**Mephyton (Vitamin K supp)

1/2 tablet Mon, Wed, Fri

**Pulmozyme

once daily

**Albuterol
twice daily





Genetic Mutation

Delta F508 and R560T


Hunter also diagnosed with Duanes Syndrome

Hunter Doing His Daily Treatments

Hunter Doing His Daily Treatments

Ren Doing Her Treatments

Ren Doing Her Treatments

Kiddos at hockey!!

Kiddos at hockey!!

Kids Rocking CF!!

Kids Rocking CF!!
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  • Cystic Gal
  • Run, Sickboy, Run - Cystic Fibrosis and Exercise
  • Not so bright & Shiny
  • Skye is the limit
  • Confessions of a Cyster
  • ♥♥The Frazier Family Chronicles♥♥

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About Mom

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Erica
I love my family and everything I do, is about them. A mom to 2 very special kiddos who have Cystic Fibrosis and a wife to a very loving husband. I am a stay at home mommy working hard to keep my kiddos healthy. I homeschool both kids as well. Working hard to find a cure for CF. This is our Journey.
View my complete profile

About Dad

Brandon is a hard working father and husband. He works full time and provides very well for us. He loves his kids more than life itself and is helping me fight this disease for the kiddos and find a cure.

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      • A 'Best' Hospital for Cystic Fibrosis Kids - US Ne...
      • Sleep Tight Goodnite Bite
      • The Guessing Game
      • CF Won't Run Our Life!!--Being Grateful
      • Moms Are So Busy
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      • What a Wonderful Day!!
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  • http://www.CFF.org

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